Comments on: What Are Cluster Headaches? http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html Everything You Need To Know About Cluster Headache Treatment Sat, 07 Jan 2012 21:35:41 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: navid http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-1076 navid Fri, 06 Jan 2012 12:38:03 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-1076 hi my cluster headache effects is exactly like "CLEMENTE"I spent four years of chronic cluster headache patients. Pain during certain hours of the day usually occurs 3 to 4 times. Pain behind the eyes of the start and after 15 minutes the right half of the my head is contain of very very pain. Runny eyes and nose with the right side of the jaw is extremely painful.original pain is behind the eyes with most perspiration and The pain is permanently high or low .In this time myeyes are extremely sensitive to light.my body is shaking because I Suffered much pain.While I sitting in ground I pressure my head in my hands Usually leave a cloth between the teeth to prevent erosion Also takes between 45 to 120 minutes.All drugs such as lithium and verapamil or Ergotamine was taking.Relevant tests such as MRI and blood test have performed well .But the only effective drug for me was a strong corticosteroid (prednisolone 50 mg daily) .The two years that I take this medicine.Once because of severe side effects (severe fine hair. Legs pain and swelling. Sharp increase in weight. Backache) I stop the medication for 2 months.But as soon as discontinued medication for severe headaches than before returning After two months, so I was forced to continue taking.During the two months I started taking prednisone from 50 to 25.I am now taking daily 25 mg prednisolone .But time is three to four times a week I get very severe headaches.I'm afraid of raising the dose of drug.Also None of nonsteroidal anti-inflammatory drugs and analgesics or the Ergotamine is an effective pain.Somatrybtan is not bad but I have not tried it, type IV.Please believe that I have a high pain tolerance threshold But these headaches are so severe that sometimes painful I think to beat my head against the wall and fell down unconscious.I've experienced the pain of breaking my hand So the pain of kidney stones But this is most painful of all, I really can not handle it.I heard that cluster headaches may cause serious damage to the optic nerve and blindness.Except for the use of steroids and surgery on the trigeminal nerve behind the eye Leading to failure of the glands secrete tears is there another way to treat this disease Please help me .Thanks NAVID 32 years old from Iran. hi my cluster headache effects is exactly like “CLEMENTE”I spent four years of chronic cluster headache patients. Pain during certain hours of the day usually occurs 3 to 4 times. Pain behind the eyes of the start and after 15 minutes the right half of the my head is contain of very very pain. Runny eyes and nose with the right side of the jaw is extremely painful.original pain is behind the eyes with most perspiration and The pain is permanently high or low .In this time myeyes are extremely sensitive to light.my body is shaking because I Suffered much pain.While I sitting in ground I pressure my head in my hands Usually leave a cloth between the teeth to prevent erosion Also takes between 45 to 120 minutes.All drugs such as lithium and verapamil or Ergotamine was taking.Relevant tests such as MRI and blood test have performed well .But the only effective drug for me was a strong corticosteroid (prednisolone 50 mg daily) .The two years that I take this medicine.Once because of severe side effects (severe fine hair. Legs pain and swelling. Sharp increase in weight. Backache) I stop the medication for 2 months.But as soon as discontinued medication for severe headaches than before returning After two months, so I was forced to continue taking.During the two months I started taking prednisone from 50 to 25.I am now taking daily 25 mg prednisolone .But time is three to four times a week I get very severe headaches.I’m afraid of raising the dose of drug.Also None of nonsteroidal anti-inflammatory drugs and analgesics or the Ergotamine is an effective pain.Somatrybtan is not bad but I have not tried it, type IV.Please believe that I have a high pain tolerance threshold But these headaches are so severe that sometimes painful I think to beat my head against the wall and fell down unconscious.I’ve experienced the pain of breaking my hand So the pain of kidney stones But this is most painful of all, I really can not handle it.I heard that cluster headaches may cause serious damage to the optic nerve and blindness.Except for the use of steroids and surgery on the trigeminal nerve behind the eye Leading to failure of the glands secrete tears is there another way to treat this disease Please help me .Thanks NAVID 32 years old from Iran.

]]> By: Wife of Mike Norrell http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-930 Wife of Mike Norrell Sat, 15 Oct 2011 15:48:11 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-930 Hi all - I feel for you all. My husband reached out to this site about a year ago and although he's still struggling with the headaches (ice pick / cluster headaches....they feel like an ice pick is being thrust into his skull) from time to time, we've made some headway. His neurologist (who has beenw onderful) prescribed nortriptyline which is considered an anti depressant. He's on a low dossage which doesn't seem to alter his mood - not in that 'foggy' state. At first nothing seemed to improve until I spoke with someone else at work who happened to suffer with the same exact symptoms. She mentioned that along with the medication she was taking from her Neurologist, she starting taking 'magnesium' which helped her tremendously. My husband has been taking them ever since and has noticed measureable improvement. I was told that magnesium doesn't work for everyone, but its worth a try. Hi all – I feel for you all. My husband reached out to this site about a year ago and although he’s still struggling with the headaches (ice pick / cluster headaches….they feel like an ice pick is being thrust into his skull) from time to time, we’ve made some headway. His neurologist (who has beenw onderful) prescribed nortriptyline which is considered an anti depressant. He’s on a low dossage which doesn’t seem to alter his mood – not in that ‘foggy’ state. At first nothing seemed to improve until I spoke with someone else at work who happened to suffer with the same exact symptoms. She mentioned that along with the medication she was taking from her Neurologist, she starting taking ‘magnesium’ which helped her tremendously. My husband has been taking them ever since and has noticed measureable improvement. I was told that magnesium doesn’t work for everyone, but its worth a try.

]]> By: Clemente http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-755 Clemente Thu, 21 Jul 2011 03:10:59 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-755 I started to have cluster headaches since 1997. I was 17yrs old and just thought they were migrains. I went to the ER a few times had cat scans MRI's X-Rays, I went to an eye DR. and he X-Rayed my eye that was in pain( right eye) and all that didnt do nothing for me. NOBODY seemed to understand the severity of the pain! Until I seen a neurologist, he knew exactly what I was talking about and he even described the pain I was feeling. Even though he didnt have a cure for me it was a big reliefe to me since everyone else thought I was crazy! My cluster headaches get pretty painful, and only you guys know what im talking about. I live in Arizona and I get mine during the Begining of summer and they come and go about every other day, sometimes 2-3 days in a row. They last about 4-6 weeks and then Im pain free for the rest of the year. The pain starts in my right eye and temple, sometimes the pain gets so bad that my teeth on the effected side start to hurt! I get in very bad moods and just dont want anyone talking to me at that time. I take Excederin Migrain, half of the time it does stop it if I take it right when it is starting "SOMETIMES" But other than that I just have to suffer through it! I found out that during my cluster period my headaches start if I sleep too much, not enough, skip meals, or drink alcohol. But I have been peer pressured to have a beer during these periods and I regret EVERY drop later when the pain starts. It hurts so bad that if i was garunteed to not have that pain any more by amputating my eye I would do it!(for those who dont understand the pain, thats how bad it is)So hopefully a cure is found soon.This really sucks for us! I started to have cluster headaches since 1997. I was 17yrs old and just thought they were migrains. I went to the ER a few times had cat scans MRI’s X-Rays, I went to an eye DR. and he X-Rayed my eye that was in pain( right eye) and all that didnt do nothing for me. NOBODY seemed to understand the severity of the pain! Until I seen a neurologist, he knew exactly what I was talking about and he even described the pain I was feeling. Even though he didnt have a cure for me it was a big reliefe to me since everyone else thought I was crazy! My cluster headaches get pretty painful, and only you guys know what im talking about. I live in Arizona and I get mine during the Begining of summer and they come and go about every other day, sometimes 2-3 days in a row. They last about 4-6 weeks and then Im pain free for the rest of the year. The pain starts in my right eye and temple, sometimes the pain gets so bad that my teeth on the effected side start to hurt! I get in very bad moods and just dont want anyone talking to me at that time. I take Excederin Migrain, half of the time it does stop it if I take it right when it is starting “SOMETIMES” But other than that I just have to suffer through it! I found out that during my cluster period my headaches start if I sleep too much, not enough, skip meals, or drink alcohol. But I have been peer pressured to have a beer during these periods and I regret EVERY drop later when the pain starts. It hurts so bad that if i was garunteed to not have that pain any more by amputating my eye I would do it!(for those who dont understand the pain, thats how bad it is)So hopefully a cure is found soon.This really sucks for us!

]]> By: Mark http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-357 Mark Mon, 24 Jan 2011 14:40:01 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-357 I have suffered with Cluster Headaches on and off since age 18. I am now 48 years old and am just beginning another set of attacks. I have tried just about every known medicine, oxygen treatments, herbal remedies, biofeedback therapy, yoga sessions, exercise regimines, etc. for the past 30 years. I have kept a journal (but lost it in Hurricane Katrina) and can honestly say that the best treatment I know is a combination of exercise (fat can contribute to cluster attacks and I've recently gained weight), avoidance of certain foods and chemicals (in my case I avoid sugar, chocolate and caffein products), anti-allergy regimine (benadryl) and if an attack happens, Imitrex pills with 5mg Vicodin and a dark room to pace back and forth in while holding my neck cradled in my hand. 30 years I've waited for the cure for this, I don't think I'll ever see it in my lifetime. As I write this, I'm feeling another attack coming on again. God help me! I have suffered with Cluster Headaches on and off since age 18. I am now 48 years old and am just beginning another set of attacks. I have tried just about every known medicine, oxygen treatments, herbal remedies, biofeedback therapy, yoga sessions, exercise regimines, etc. for the past 30 years. I have kept a journal (but lost it in Hurricane Katrina) and can honestly say that the best treatment I know is a combination of exercise (fat can contribute to cluster attacks and I’ve recently gained weight), avoidance of certain foods and chemicals (in my case I avoid sugar, chocolate and caffein products), anti-allergy regimine (benadryl) and if an attack happens, Imitrex pills with 5mg Vicodin and a dark room to pace back and forth in while holding my neck cradled in my hand. 30 years I’ve waited for the cure for this, I don’t think I’ll ever see it in my lifetime. As I write this, I’m feeling another attack coming on again. God help me!

]]> By: Darla http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-340 Darla Fri, 07 Jan 2011 00:04:44 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-340 This note is for Tori. You are not alone! CAT Scans/MRI/Spinal Tap blah blah blaj...I was in the hospital right around when you were for the 4th time that month. The ER knows me by first name. They finally admitted that I was out of their league and to see a neurologist. I had a doctor make the referral and I got in a lot quicker. This note is for Tori. You are not alone! CAT Scans/MRI/Spinal Tap blah blah blaj…I was in the hospital right around when you were for the 4th time that month. The ER knows me by first name. They finally admitted that I was out of their league and to see a neurologist. I had a doctor make the referral and I got in a lot quicker.

]]> By: admin http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-303 admin Sun, 26 Dec 2010 14:20:28 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-303 Hi Tori, I don't know if you are going to a neurologist for treatment, if you aren't, you just do that. Besides that, take a look at the following site: http://ouchuk.org/html/clusters_treatments.asp They have all the medication listed your doctor should try out (depending on your background) which can help. I hope this helps you. Leslie Hi Tori,

I don’t know if you are going to a neurologist for treatment, if you aren’t, you just do that. Besides that, take a look at the following site: http://ouchuk.org/html/clusters_treatments.asp They have all the medication listed your doctor should try out (depending on your background) which can help. I hope this helps you.

Leslie

]]> By: Tori http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-301 Tori Sun, 26 Dec 2010 06:55:09 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-301 I have been having cluster headaches for the past 4 years or so. I have yet to determine a specific trigger. Been to a neurologist and he ran all kinds of tests all of which came back normal. My headaches are very intense generally always on the left side of my face around the eye and over to the temple. I cant seem to find anything to keep them from happening and once they do hit I cannot get rid of them. They usually go on for a minimum of 4 days and I usually end up having to go to the hospital. When I go there it seems the only thing that helps is a mix of phenergan, benadryl, and dilaudid, but most are hesitant to do this because of drug addicts. This week I have had an episode and 2 days in with that treatment it did not work, so I am figuring that it is only ready to break up after so many days. If anyone can help me find a better solution to keep them away or get rid of them once they come on please help. I'm tired of being looked at like a lunatic when I go to the hospital after 3-4 days of agonizing pain and all they hear is "headache". I will take any advice I can get. I have been having cluster headaches for the past 4 years or so. I have yet to determine a specific trigger. Been to a neurologist and he ran all kinds of tests all of which came back normal. My headaches are very intense generally always on the left side of my face around the eye and over to the temple. I cant seem to find anything to keep them from happening and once they do hit I cannot get rid of them. They usually go on for a minimum of 4 days and I usually end up having to go to the hospital. When I go there it seems the only thing that helps is a mix of phenergan, benadryl, and dilaudid, but most are hesitant to do this because of drug addicts. This week I have had an episode and 2 days in with that treatment it did not work, so I am figuring that it is only ready to break up after so many days. If anyone can help me find a better solution to keep them away or get rid of them once they come on please help. I’m tired of being looked at like a lunatic when I go to the hospital after 3-4 days of agonizing pain and all they hear is “headache”. I will take any advice I can get.

]]> By: admin http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-85 admin Sat, 06 Nov 2010 13:54:36 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-85 Hi Michael, I'm no doctor myself, and I never heard of the combination cluster headaches with seizures, but if I were you I'd run (not go, RUN) to a neurologist to get this checked out. This is not good. Make sure to take a look at ouchuk.org before you go so you have some basic knowledge of the correct medication for cluster headaches and you'll know what to expect. Leslie Hi Michael,

I’m no doctor myself, and I never heard of the combination cluster headaches with seizures, but if I were you I’d run (not go, RUN) to a neurologist to get this checked out. This is not good. Make sure to take a look at ouchuk.org before you go so you have some basic knowledge of the correct medication for cluster headaches and you’ll know what to expect.

Leslie

]]> By: michael norrell http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-83 michael norrell Fri, 05 Nov 2010 10:54:44 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-83 hello, my name is mike. i have numberous cluster headaches daily. once the headaches accur (sudden spike), then my body jerks and my hands go numb.also, at the moment of impact i have short term momery lost few minutes then i regroup. i was put tried anti-seisure meds and it made me feel sudated and it caused me to have very bad mood swings. then i tried a opitcal nerve block. i was to happy with that treatment either. roughly 25 minutes after the treatment the numbness was gone but my headache was still present. the next day, i awoke with feelings like the left side of my face was drooping and slearing my words as i spoke. i am a chef and a kitchen is not a safe place when im having these problems. can you please help, thanks chefnorrell@yahoo.com hello, my name is mike. i have numberous cluster headaches daily. once the headaches accur (sudden spike), then my body jerks and my hands go numb.also, at the moment of impact i have short term momery lost few minutes then i regroup. i was put tried anti-seisure meds and it made me feel sudated and it caused me to have very bad mood swings. then i tried a opitcal nerve block. i was to happy with that treatment either. roughly 25 minutes after the treatment the numbness was gone but my headache was still present. the next day, i awoke with feelings like the left side of my face was drooping and slearing my words as i spoke. i am a chef and a kitchen is not a safe place when im having these problems. can you please help, thanks chefnorrell@yahoo.com

]]> By: admin http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-76 admin Sat, 30 Oct 2010 10:21:23 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-76 Hi Fred, It is quite possible to be headache free for a year or more (in your case two) and then having the active periods starting again. I'd check with your doctor to start a treatment so you can go through the days as painfree as possible. Leslie Hi Fred,

It is quite possible to be headache free for a year or more (in your case two) and then having the active periods starting again. I’d check with your doctor to start a treatment so you can go through the days as painfree as possible.

Leslie

]]> By: Fred http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-75 Fred Sat, 30 Oct 2010 03:46:27 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-75 Hi I was free of my cluster headaches for about 2 years after suffering for approxametly 2 years, and now they have returned. Can this be stress related? I have also gained a bit of weight since then, also I always seem to be tired all the time. Hi I was free of my cluster headaches for about 2 years after suffering for approxametly 2 years, and now they have returned. Can this be stress related? I have also gained a bit of weight since then, also I always seem to be tired all the time.

]]> By: Claud Rutheford http://www.clusterheadachetreatment.org/cluster-headaches-definition-2.html/comment-page-1#comment-63 Claud Rutheford Sun, 17 Oct 2010 03:58:52 +0000 http://www.clusterheadachetreatment.org/?p=324#comment-63 If you're male, over the age of 40, and overweight, you are at high risk for developing sleep apnea. You may have already developed it and don't know it yet. If you are chronically fatigued and never feel as though you've gotten a good night's rest, it's a good sign that you could have the condition. If you’re male, over the age of 40, and overweight, you are at high risk for developing sleep apnea. You may have already developed it and don’t know it yet. If you are chronically fatigued and never feel as though you’ve gotten a good night’s rest, it’s a good sign that you could have the condition.

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